H3ABioNet provides guidance on phenotype data collection using REDCap
Data & Standards
REDCap
H3ABioNet provides guidance and support for clinical research data collection through recommending the implementation of REDCap and offering links to resources and training support.
"REDCap is a secure web application for building and managing online surveys and databases. While REDCap can be used to collect virtually any type of data (including 21 CFR Part 11, FISMA, and HIPAA-compliant environments), it is specifically geared to support online or offline data capture for research studies and operations. The REDCap Consortium, a vast support network of collaborators, is composed of thousands of active institutional partners in over one hundred countries who utilize and support REDCap in various ways." https://www.project-redcap.org/
Whilst we also make use of REDCap for administrative purposes within H3ABioNet, our main focus is on supporting genomic research studies with the building of clinical research databases in REDCap. During this process, we encourage data standardisation (recommending the Std. CRF) and examining creative ways to use REDCap for solving common data collection problems faced in genomic research in Africa.
"REDCap is a secure web application for building and managing online surveys and databases. While REDCap can be used to collect virtually any type of data (including 21 CFR Part 11, FISMA, and HIPAA-compliant environments), it is specifically geared to support online or offline data capture for research studies and operations. The REDCap Consortium, a vast support network of collaborators, is composed of thousands of active institutional partners in over one hundred countries who utilize and support REDCap in various ways." https://www.project-redcap.org/
Whilst we also make use of REDCap for administrative purposes within H3ABioNet, our main focus is on supporting genomic research studies with the building of clinical research databases in REDCap. During this process, we encourage data standardisation (recommending the Std. CRF) and examining creative ways to use REDCap for solving common data collection problems faced in genomic research in Africa.
Learn more about REDCap by watching a brief summary video (4 min). If you would like to view other quick tutorials of REDCap in action and an overview of its features, please see the Training Resources page.
Technical Guidelines
H3ABionet established REDCap Guidelines will be available here in addition to helpful links.
Support
Helpful hints
